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president4609
Oct 251 min read
October Newsletter Out Now
Check your inboxes or click this link for all our latest news about get togethers for Rare Disorders Month on 8 March 2025, Bear's...
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president4609
Aug 41 min read
TSCNZ AGM 10 August in Auckland
Come and join us in person at Crave Cafe in Auckland or online at the TSCNZ AGM at 2pm on Saturday 10th August. Email info@tsc.org.nz to...
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president4609
May 111 min read
TSC Merch, Global Awareness Day Chat and more
Go to our Newsletters and Resources page for our latest newsletter or click on this link. Find out about your chance to support TSCNZ and...
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president4609
Oct 4, 20231 min read
October Newsletter is in inboxes now
Click on this link for all the latest news - AGM Report, Website update, Membership request, Rare Disorders NZ Survey, TSC Chats,...
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president4609
Jul 23, 20231 min read
July Newsletter is Out Now
Check out the July newsletter for details of our upcoming AGM on Zoom on the 7th August, Conference news and videos, Epilepsy NZ survey...
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president4609
May 8, 20231 min read
Conference Registrations Closing Soon
Don't miss out! Registrations for the NZ TSC Conference this coming Saturday close on Wednesday 10th May. See you in Auckland! Follow...
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president4609
Apr 19, 20231 min read
April Newsletter
Our April newsletter is out now! Click on this link for all the information about our upcoming conference to mark Global Awareness Day,...
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president4609
Dec 20, 20221 min read
Conference Registrations Now Open
Conference registrations and applications for travel & accommodation grants are now open. Click on the eventbrite link for all the...
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president4609
Nov 22, 20221 min read
November Newsletter
Our November newsletter is out now at this link! Lots of news and some important upcoming dates including our next national conference on...
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president4609
Jul 10, 20221 min read
July E-News
The July E-News is out now with all the details of our AGM to be held on Sunday 7th August at the Auckland Botanic Gardens, a report on...
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president4609
May 3, 20221 min read
We Value Your Feedback
As the country and world open up again, we thought it would be a good time to take stock of where we are as an organisation. TSCNZ aims...
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president4609
May 3, 20221 min read
TSCNZ Newsletter April 2022
Lots of news in our latest newsletter which is out now including Te Aroha Music Festival, TSCNZ Survey, Committee News, Membership...
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TSCNZ
Mar 8, 20221 min read
Parachute Packs
Almost 200 of these wonderful, informative resources for newly diagnosed individuals and families have been sent out to families,...
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TSCNZ
May 14, 20211 min read
April Newsletter - Awareness day and online conference ...
Our April Newsletter is out. It covers a range of things including the Global Awareness day on May 15th and the Onlin e conference that...
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TSCNZ
Dec 5, 20201 min read
November Newsletter Out Now
Please see our latest MailChimp newsletter. It includes items on: Progress on Funding of Sirolimus, Research News, Global Awareness Day,...
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TSCNZ
May 9, 20201 min read
TSC Global Awareness Day - May 15
Online Awareness Campaign We hope you have come through Level 4 as well as possible. Although we are still unable to meet in person, we...
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TSCNZ
Apr 12, 20201 min read
April Newsletter
Looking at news from around the world, I am feeling grateful ...but also acknowledge that it is a very stressful time for many here also.
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TSCNZ
Mar 18, 20202 min read
Coronavirus and TSC: Information for the TSC community
Thanks to TS Australia and their medical experts for this information: We know that like everyone, our TSC community is being flooded...
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TSCNZ
Feb 18, 20201 min read
Feb Newsletter
The Feb TSCNZ newsletter is on our Resources page ... includes ... positive news from Pharmac, Sydney conference, "Fair for Rare" campaign.
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TSCNZ
Jan 27, 20201 min read
Nov Newsletter
The Nov 2019 newsletter is now up on the site - sorry for the delay. You can find it on our Resources page along with all our old...
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